Life Long Medication

Some of you may be wondering why we will be holding fund raisers and raffles long after my mother gets her transplant. After her transplant she is going to need take anti-rejection medicine for the rest of her life. I have done some research and below is what I’ve found to explain what they are and why transplant recipients need them to better explain.

“Anti–rejection (immunosuppressant) medications decrease the body’s natural immune response to a “foreign” substance (your transplanted kidney). They lower (suppress) your immune system and prevent your body from rejecting your new kidney.

Kidney rejection is hard to diagnose in its early stages. Rejection is often not reversible once it starts. You should never stop taking your anti-rejection medication no matter how good you feel and even if you think your transplanted kidney is working well. Stopping or missing them may cause a rejection to occur.

There are 3 groups of anti-rejection (immunosuppressant) medications:

Induction agent – Powerful anti-rejection medication used before the transplant in the operating room, or immediately after the transplant surgery
Maintenance agents – Anti-rejection medications you will take daily for as long as you have your transplanted kidney
Rejection agents: Medications which are used for the treatment for rejection episodes”

The cost of this medication ranges from $13,000 to $20,000 per year. After three years, we will have to pay these costs out of pocket.

After the initial transplant surgery my parents and brother will have to stay down in Tampa for an extended amount of time and with your help they will be able to pay for the funds going towards that and the remaining funds will be set aside for medical expenses over the years including these life saving drugs. I wanted to share this information so that all you wonderful people who have been donating know exactly what your money is going to and why we have to continue to raise money in the future years to come. We are going to be raising money in any way possible (auctions, raffles, fund raising events, etc.) We thank anyone who has donated and are going to donate from the bottom of our hearts. We sit and watch the generosity roll in from people we’ve known forever to people we’ve met only one time to people we have never even met in person.

We must sounds so repetitive but we just never expected so much.. We went into this blindfolded and with your love, support and donations we have found a group of people who uplift us with all your love.

My mother is such a strong woman.. She has been living with this for years, she doesn’t complain, she doesn’t sulk and feel sorry for herself, when you see her she is always in good spirits. It’s incredible.. You would never guess she had any health issues at all. When she first got on dialysis and had a tube put into her stomach my dad, brother and I all said at one point, “I wish I could take her place so she wouldn’t have to go through this.” It’s so hard for us to see her hooked up to a machine every night for nine hours and not be able to change the situation. My brother is selfless and he’s brave and he’s the one person who’s giving her this second chance at a normal life. We are thankful for him volunteering his kidney to better my mom’s life. My dad sits in the shadows, not expecting any recognition but he is her rock. He is the person who takes care of her, cooks for her, takes her to doctors appointments, hears all the health results (good and bad), continues to stay as strong as ever and loves her unconditionally. He is her angel. They make one hell of a team.

I hope that you all continue to share my mom’s story and our website. The smallest act of kindness from prayers, to loving words, to a dollar donation.. They all mean everything to my mother and our family. My mom is tough, but she is more emotional than all of us combined after seeing the beautiful words that people say and for the new donations that keep coming.

Overall, we are thankful. Thankful for family. Thankful for Eric. Thankful for my dad. Thankful for my mother’s wonderful doctors. Thankful for all the blessings that we have even when times are tough. We are thankful for each and every one of you.

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One Response to Life Long Medication

  1. I am a friend on Caleb, a good friend of Eric’s. Caleb has told me of your mother’s story. I am a kidney recipient; given to me by my eldest son six years ago. The anti rejection medication can put a terrible strain on a families finances but must be taken for the rest of the recipients life. You should contact the American Cancer Society to see if they can help long range with these expenses. This is something they use to do. I wish your mother well and hope that people will open their hearts and their wallets to help out with these ongoing expenses.

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